15 december 2018
In the meantime, in a parallel universe
March 2018. Ik hear the neurologist say I have Parkinson’s disease. I am still physically in her treatment room, but I notice that I am quietly ‘leaving’, away from here.
To receive a diagnosis of a chronic neurological illness is the beginning of a long journey into the unknown—a journey that may begin in hope, pass through periods of elation and frustration, and finally end in acceptance and resignation | Baker, M. G., & Graham, L. (2004). The journey: Parkinson’s disease. BMJ (Clinical research ed.), 329(7466), 611-4. Retrieved from https://doi.org/10.1136/bmj.329.7466.611
Drawing a new map
December 2018. I have been on the road for three quarters of a year now in the parallel universe called Parkinson. I am fully charting what it looks like here, which trips I can make, which boundaries are there, whether I can or can not overcome them, and how I can take the people I love into new territory.
On this website I hope to regularly give you an update about my expeditions.